European Observatory on Health Outcomes, Introduction to EEDS in Data Collection

The Health Outcomes Observatory, which will be launched in June, will link data from national observatories across Europe; the initiative is a precursor to the next European Health Data Space (EHDS). It aims to securely harness patient-reported health data to improve patient care, health research and policy making.

Launch of the European Observatory for Health Outcomes H2O”It is a major advance to empower patients and health research across Europe.“They confirm that Farm IndustryThey are one of the project’s sponsors from Spain. As they explain, the initiative wants to “create a robust data management model and infrastructure that allows the collection and integration of patient-reported health outcomes at scale into health decision-making at the individual and population levels.”

The observatory is headquartered in Denmark, and Spain is one of only four countries to have a national water observatory, along with Germany, Austria and the Netherlands. The Spanish project is the first large-scale European initiative to systematically collect and integrate patient-reported outcomes into healthcare decision-making.

“The European Health Data Space will allow the reuse of health data, with security and safeguards, for research, innovation, monitoring of outcomes and design of health policies. This secondary use of health data is an opportunity that will benefit all citizens.” EU-funded H2O project It aims to provide a solution to the lack of standardization and accurate methods for measuring health outcomes. “From the patient’s point of view, it facilitates the use of the data for the proposed purposes,” explains Arantxa Sancho, Director of the Medical Scientific Affairs Department at Farmaindustria.

“Research based on health outcomes is essential to advance medical knowledge and improve the quality of life of populations. This approach allows us to identify and implement best clinical practices, optimize resources and ensure that treatments are effective and safe, without losing focus on patients and society. In this context, the establishment of the European Observatory represents a crucial step. An observatory of this type will not only provide A common framework for data collection and analysis, but it will also ensure that health policies are informed by the latest and most robust evidence.“Pilar Rodriguez Ledo, President of the Spanish Society of General Practitioners and Family Physicians (SEMG) And H2O Secretary.

“This in turn will provide protection for all European citizens, ensuring that public health decisions are based on proven results and benefit the entire region equitably. It also values ​​the community, and with it the crucial role that primary care, close to the community, plays in the research process based on health outcomes,” adds Rodríguez Ledo.

This portal will provide an opportunity to unify outcomes data in the field of medical care, which means, in addition to patients, empowering and enabling them. Amplify your voice in the system. The European level will contribute to the creation of a common language that amplifies the quality of care across borders and positions Europe as a leader in medical care and data-driven research.

This observatory is a project funded by the Innovative Medicines Initiative of the European Union (IMI), the largest public-private partnership resulting from an agreement between European Commission European pharmaceutical industry (Ebia). This alliance facilitates collaboration between key stakeholders in biomedical research, including universities, research centres, the pharmaceutical industry, SMEs, patient associations and regulatory bodies.

The participating bodies in the Spanish Observatory are: Vall d’Hebron University Hospital of Barcelona, ​​Takeda Pharmaceuticals, Society of General and Family Medicine (SEMG), Spanish Society of Family and Community Medicine (Symfic), the European Academy of Patients Concerned for Therapeutic Innovation (Eupati), the Spanish Association of Lung Cancer Patients (Aeacap), and the Spanish Federation of Diabetes (Fede), Spanish Federation of Health Technology Companies (Fenin)Quirónsalud Hospital Group, Innovation Consulting firm Ideas for Change, the Government of Catalonia and Farmindustria.